All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice".

All management plans are customized to each patient's needs/disorder and my information is exclusive to my specific needs and are overseen carefully by my team at Strong Memorial Hospital in Rochester, NY.

If you have any questions about anything you read here, in regards to UCD's, please feel free to take what you have read directly to your own team.

Remember, I am just a patient, not a doctor. I would LOVE to talk to anyone about "everyday living" with Urea Cycle Disorders and would be happy to answer any questions...anytime at all.


Amy & J.J.

Amy & J.J.
Happiness is possible even while living with a UCD


Wednesday, June 2, 2010

Bone Yard trying to open for Kiss

Please go to this site and vote for Bone Yard to open for KISS at Darien Lake in Darien Center, NY on August 13th.

My hubby, J.J., is the lead singer for Bone Yard and KISS is his favorite band so opening for KISS is his dream of a lifetime.

Please e-mail me or contact me via Facebook if you have any questions regarding voting.

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