So as some of you may be aware, the specialist who had been following me at Strong Memorial Hospital here in Rochester, NY, Dr. Georgianne Arnold, left for a new job at Children's Hospital in Pittsburgh.
Met her temporary replacement, Dr. Jennifer Kwon, yesterday morning. Appointment went very well. Ammonia was only 55, which for me is good. I know that is not optimal but I also range high. I am not currently anemic and that is something I always struggle with. My amino acids were within the normal range.
So I do not have to go back for another year. In the meantime, I am going to try eating some probiotic yogurt everyday to try and deal with some tummy/intestinal issues I am having. We are also going to try and get my heath insurance to cover citrulline or arginine again since I will be on a new health plan after the 1st of the year.
Only bad part of the appointment was getting my labs done because once again I got a phlebotomist who did not understand the importance of putting the vial of blood for the ammonia level on ice right away.
But knock on wood, I am stable and and the doctor was happy with my labs so I am happy.