All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice".

All management plans are customized to each patient's needs/disorder and my information is exclusive to my specific needs and are overseen carefully by my team at Strong Memorial Hospital in Rochester, NY.

If you have any questions about anything you read here, in regards to UCD's, please feel free to take what you have read directly to your own team.

Remember, I am just a patient, not a doctor. I would LOVE to talk to anyone about "everyday living" with Urea Cycle Disorders and would be happy to answer any questions...anytime at all.


Amy & J.J.

Amy & J.J.
Happiness is possible even while living with a UCD


Friday, March 11, 2011

MRI Imaging Study

So it is official...I have picked a date to participate in the MRI Imaging Study at Georgetown University.

Sunday May 14th will be spent participating in this study.

Hopefully I will stay healthy because last time I traveled to DC to participate I got bronchitis and was coughing so bad I could not participate because I would not have been able to lay still in the MRI machine.

Have any of my fellow UCD patients participated in this study?  Trying to figure out what to expect.

Remember that all of the research being backed by the National Urea Cycle Disorders Foundation is important and the more patients who participate the more likely we are to get results we can use and continue to hold onto our funding.

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